Tomorrow chemo starts. Malcolm is doing well. He had the dressing on his central line changed on Friday because there was more oozing. His skin is getting raw from having it changed so much (it is made of a substance that really adheres to the skin). I have a feeling they will change it again tomorrow because there has been a bit more oozing. But the site itself is looking really good and seems to be healing well, which is the main thing. Tomorrow we must present ourselves at the inpatient unit at 8:30 am. We will be shown to our (Malcolm's) room and he will begin chemo. It is given by way of IV for 96 hours plus he needs to take one drug orally. Also, tomorrow around 1pm he will have a lumbar puncture (spinal tap or intrathecal injection are other terms that mean the same thing) to give him some chemo straight into his spine, and some of the spinal fluid will be obtained for testing. He will be sedated for that procedure so can have nothing to eat tomorrow morning.
We had a wonderful weekend. The weather was great here and we spent a lot of time outdoors. I did a few special things with Donovan - took him to a nearby beach yesterday, made some of his favourite foods, let him decorate some cupcakes, had some friends over to play. He helped pack some of Malcolm's toys this afternoon. Malcolm is doing great and taking more steps every day - he took six in a row on the weekend!
A special thank you to everyone who has wished us well by sending comments on this blog, emails to Jan or I, by making us food or giving us gifts, or offering to help with Donovan or other tasks. All of your support is greatly appreciated.
Wish us well tomorrow,
Mary Ellen
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