Tuesday, August 17, 2010

Malcolm has been doing really well the past couple of days. His counts are starting to fall but he has a better appetite than last week and has more energy. He is only hooked up for nap and at night and since he is done his mandatory anti-nausea medication (Zofran is given regularly during chemo and for at least 24 hours afterwards) hopefully he will only need to be hooked up during nap today and can be free tonight (he needs to be hooked up a bit each day because they want him to get a lot of fluid every day).

We have been out on day passes every day since Saturday and will get one again today as his ANC is still 800 (the cutoff for a pass is 500). The pass allows us to go out for 4-6 hours. We go out after his nap so that we can have some playtime and then supper at home. It has been nice for everyone but especially Donovan. His platelets are still 111 and hemoglobin is 105 so likely no need for any transfusions for at least a few more days. Hopefully his counts stay high enough that we can go out again tomorrow.

The boys are out doing activities in the playgarden so I will go join in the fun now. The playgarden is a wonderful perk for kids and families here at the hospital.

Mary Ellen

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