Malcolm's platelets zoomed up to 117! So no more new bruises, and the ones he has are fading fast. His hemoglobin was steady at 82 so he will almost certainly avoid needing a transfusion for that this round. His ANC was down a bit to 22 but everyone here is expecting that it will start to rise very soon. It looks like (knock on wood) we will avoid fevers this round but we still have a few days before we are out of the woods so too early to celebrate.
It was a sad day today because the playgarden is closing its supervised hours so no more fun activities provided out there for the boys. I can still take them out and they may start offering times where they at least open up the little cottage and the shed where they store all the toys, which would be nice.
The playgarden is a wonderful place and the only place we can go that is actually outside the hospital. Unfortunately, it faced a huge cut to its staff budget (about 50% fewer staff than last year) and there are no funds to provide for anyone to maintain its hours now that summer is over. It is too bad that the hospital chose to cut a service that is so beneficial to patients and families in a situation like ours - hopefully they will rethink their decision at some point and restore some funding. In meantime, we will make do with what we have and hope that we can leave soon for a much needed break at home.
Mary Ellen
No comments:
Post a Comment