One of the reasons I keep such a detailed blog of Malcolm's treatment is to share with other families who receive the same diagnosis what the treatment may entail. When Malcolm was diagnosed, we were given virtually no information on, in practical terms, what to expect and how it would impact him and our family. I found Carey's Dream Big blog and it was a wonderful source of information. There are some other blogs by parents of children with the same type of leukemia that Malcolm has and I thought it might be useful to share them here. You can read about their experiences by clicking on the links below. Warning: not all of these stories have happy endings (though it is important to keep in mind that a big majority of kids with Malcolm's type of AML do make a full recovery).
http://www.caringbridge.org/visit/landonmorrill
http://thedailylois.blogspot.com/
http://livinglifewithes.blogspot.com/
http://littlewonders-heather.blogspot.com/
http://cbranam.blogspot.com/
http://sweetellagrace.blogspot.com/
Mary Ellen
Have you met this family who have recently had a diagnosis of leukemia too?
ReplyDeletehttp://www.gregorgillis.com/
I imagine they will be with you at the IWK?
Alice